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Monday, April 13, 2009

Peace, at last

My Mother passed today, peacefully with the love of her life, Daddy at her bedside. I'm so relieved to know she'll suffer no more. My heart breaks for him, they've been married 61 years last August. My two brothers, their wives, and my husband and I were there; though not in the room with them. I think their relationship was so very special that is nice they had those final moments together.

Daddy and I had gone this am to make arrangements. She knew we were putting things in order and I believe this too gave her comfort.

I'm grateful she's now at peace, and have begun thinking about how to best help Daddy through this next trial. It's Spring, a time of growth and renewal------he's a consumate gardner and I pray he'll find comfort in planting and tending his garden.

Thank you all for the continued support you've given, I truly appreciate it---more than I know how to express.

Sandy

Sunday, April 12, 2009

Hospice

Ash Wednesday is the night Mom went into the hospital and had emergency surgery, a few days ago Good Friday the doctor told us she would not heal. I asked if hospice was appropiate and his answer-- we've crossed the line where we're preventing her death instead of prolonging her life. We consulted Hospice and today Easter Sunday will be her first day under full Hospice Care. Once papers were signed yesterday it took til 8:30 last night to physically get the move done. She is very much at peace with this decision; though it was a difficult one for the family to come together on. I take comfort in knowing her decision is the right decision; though I say it with a heavy heart.

I hope each and everyone of you spend this special day with loved ones.

Friday, April 10, 2009

Comfort Care, Do Not Resuscitate

After my last post, thngs continued downward. Her breathing was labored, shallow, vitals all over the place in both directions high and low. Blood sugars irratic, pain level increasing, flow from the chest tube very minimal to where they decided to remove it. Feeling that it might help her be more comfortable. The decision made that she was very depressed and in lots of pain and the talk of taking back to ICU only highten that depression. So, family discussion and DNR order written. The doctor felt if the tube went in, it would never come out and thats not what anyone wants. Once the decision was made and she was able to discuss her wishes, see family members she became more calm and that seemed to help her breathing. Changes in her meds with the inclusion of a mood elevator also helped; not only her-- but family as she looked better. The tough part is is it an elusion? Her vitals are better, her breathing was better, they took out the G tube also. Her hemaglobin continued to drop farther and got down to 8 again; 2 more units of packed cells were given. This now makes 12 or 14 units of packed cells she's been given; so clearly the bleeding is still an issue. After the cells are given she has a little more color, a little more energy and her level actually got to 12 one day, the next day it dropped to 11.5, wonder what it will be today. If the count levels out or maintains, they may feel the bleeding is coming under control; but we've been many times before. Confusion and pain increase when hemaglobin drops.

Yesterday, they decided to see if she could tolerate any food. This is the 3rd attempt since surgery 7 wks ago. She had small amounts of hot tea at all 3 meals yesterday with some very thin diluted brooth, a little Italian Icy. She didn't throw up, or have more pain as she has in the past; but it's too soon to tell if her stomach is going to process it this time.

Her partially calapsed lung has worsened in the past 2 days, and yesterday 2 Interns/Residents were talking about chest tubes again. I told them she's already had 3, and I didn't think she'd let them put another one in. They wrote orders for an occlusion dressing at the site of the last chest tube to hopefully prevent air from the outside from entering, feeling that might help the situation. They'll do another chest x-ray today. The other possible reason for the calapsed lung would be a hold in the lung; but that isn't showing up on x-ray.

She's so very tired of this all, depressed. I don't think I can count the number tests, tubes, holes etc. her poor body's been through.

Thanks again to all for your continued support both here via comments, emails etc. I truly appreciate each and every hug, good vib, and prayer.