Good bye ICU, better??

Been a few days since I posted an update. I have mixed and confused feelings about whether or not Mom is doing better. She's left ICU, which means they think she's doing better; but we're up and down with that feeling. She's miserable, she's in pain, they've continued to do lots of test and she is well beyond discouraged. Monday late in the day (dinner time) they moved her from ICU to step down. The move alone caused her both emotional and physicial difficulties. Tubes get jostled during the rolling around process which causes discomfort. They began giving her food, but she didn't tolerate it well. She felt nauseated, full and nothing tasted good. She's not yet gotten her voice back since the respirator was removed. Getting help takes longer, larger unit, more patients per each nurse etc. Plus when they answer her call light over the intercalm she's not able to speak up enough to let them know what her needs are. Occupational and Physical Therapy came in and did a wee bit with her which cause her heart rate to get real high, her oxygen level to drop (thus oxygen put back on), and caused her more pain and tired her out. Medicated and a nap were in order. No sooner did she fall asleep til they came in and removed both chest tubes..............she said the pain was excruciating. She looked very bad after that and had a tough night, followed by a tough day of more nausea, vomitting, x-rays etc.

Obstruction? They're wondering, as she's full even when they aren't feeding her. After another round of x-rays (too many to count at this point), they moved her yet again to another floor. They discussed putting other tubes in last night and she was most upset about that. However, when I left around 10 last night I was told no tubes, and they were through poking and prodding...or at least for the night.

I don't know what to expect for today.

I've spent 3 days making phone calls and visiting rehab centers in and around my work schedule; trying to prepare for when she'll be released (as I think they do things too hurried and beds in good rehab centers aren't that easy to come by. I've toured 4 and talked to about 8, and have her on a list for 2.

I'm very wordy this am, sorry sometimes it's good --sorta of release for me to type about it.

HUGS to one and all for the prayers, please keep'em coming.

Making Headway!!! YIPPEE

Mom's stitches in her head (from the injury when she fell at the first Rehab Center), will come out on Sat. She'll then get to wash her hair which she's really looking forward to. Many thanks for all the good vibs, prayers and wishes from you all. She's making a wee bit of headway each and every day.

Hats and booties sent to Marine Corp Kids today. 4 of the booties match the hats and could be used as sets; or if when received the need to separate to cover more families...that works too. All items knit.

Addressed and mailed out a stack of please donate to the Cancer Society today also. You know, when you sign up to be your neighborhood representative.

My back is still far from 100% and I was super tired working yesterday on my feet. Perhaps today will go better. I'm hoping to maybe find a place to have a massage early next week to help.

Worked a bit on Candy Corn Ghan again. Seems forever since I've worked on it.

Fingers and Toes Crossed

Well since the posting of Worst Week (previous post), I'm almost afraid to say shhhhh things might be getting better. Everytime I think things look better, or look like we're moving forward...we go back 4 steps.

Mom got released to the 2nd Rehab Facility from the Hospital on Sunday. The day everyone was sick, Dad, my husband me sorta, my sister-in-law; my nephew stayed with Dad for the night so at least we felt better that nothing further would happen to him.

Hubby had the lightess case of the 3 of us. ONly part of the day and just felt tired for another day, I had it slightly over 12 hours and felt dizzy and light headed for 3 days, daddy lost 7 pounds..he was somewhere in between the 2 of us with severity.

I check on everything Sunday am, and head back home to regroup and recoup, and fill everyone in over the phone. Dad calls early next morning....pre 8 am to say he's ready to go to the hospital. He wakes up my older brother after waking me up. We know...my brother and I that the release is gonna take HOURS, and try to explain; but Dad thinks he needs and wants to be there first thing. So...off we go. We stand around for about 4 hours, finally everything is official, ambulance comes and we head to The Rehab Center. She has a nice private room, roomey, nice and efficient staff, the room is yellow---her favorite color and we're all pretty up when we see everything....except her. She says she doesn't like it, bed's too hard, the food isn't good, and on and on and on. Can't think of any positive thing she said. We all tried really really hard to get her to see this was best. Daddy spent the night with her, slept in a reclincer in her room. He was misserable, uncombfortable and his back was bothersome next day.

Fast forward today is Tuesday and it's almost over. She must have realized this was really the best for her, for daddy, and for us and the only way she was going to recover. Her attitude was much improved the next day when she called, and then I visited and ran several errands for them. Had one rest day-get acquainted with the facilty day, then Monday the hard work of physical therapy began. Tuesday, today...harder and more painful still...but she's beginning (the first time in about 1 month), beginning to make headway. Now, daddy's being a bit of pill. I don't want to get old. Emotionally, this is awful for both of them. They are, and we kids are, realizing they aren't and never will be again independant. It's official now, my older brother said. Our parents are old and are roles are reversed. It's really quite sad, frustrating, difficult.

Had my 3rd chiropracter apt today, and hoping I'm gonna be able to maintain tomorrow at work. I work a very fast past job, always on my feet and if they weren't short staffed right now...really wouldn't be going back tomorrow. Told them I would do my best, but was not 100%, and was most definately slower than normal. My job is pretty physical, so we'll see how it goes.

Sent off a large stack of Thanksgiving Cards for Shareacard today, waiting on address to send 6 pr. of booties and 4 hats (to be picture...maybe tomorrow) for the 10 preemie project through Homespun Helpers. Worked a bit tonight on the Candy Corn Ghan (haven't touched it in months).

I've not had time to come and visit any of you, to see what you're all up to. Hope all are doing well, and I will try to soon. Many many thanks for your understanding, your good wishes and vibs and prayers....all much needed and very much appreciated.

Hugs
Sandy